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Beta Major · Parent · Auckland
"The phone call that changed everything."
Priya R. on the year between her son Arjun's diagnosis at 14 months and finding TASCA NZ.
The people behind the numbers, in their own words. (Names changed where requested. All shared with consent.)
Priya R. on the year between her son Arjun's diagnosis at 14 months and finding TASCA NZ.
Sione K. on what it's like when your ED visit goes right, and why that should be normal.
Ravi S. on being a thalassaemia warrior in adulthood, and why visibility matters.
Anaru & Aroha on navigating family planning, carrier status, and a difficult conversation.
Hana T. on growing up as the well sibling, and why she became a haematology nurse.
16-year-old Mehak on managing school, social life, and chronic illness all at once.
Eseta V. on Pacific identity, sickle cell, and finding her people.
Sarah M. on what she had to figure out alone, and what she wants every clinician to know.
Lived experience moves policy. If you'd like to share your story, anonymously, with full editorial control, in your own words, we'd love to talk.