Want to do something, but not sure what? Here are real ways to move the needle. Pick one. Pick five.
Adding haemoglobinopathy detection to NZ's heel-prick test. The campaign of the decade.
Pushing Pharmac to evaluate the new gene therapies approved internationally.
Standardised pain crisis protocols across NZ emergency departments.
Add your name to our active campaign, takes 30 seconds.
We have letter templates ready. Email yours in 5 minutes.
Repost campaign updates on social, even one share matters.
Lived experience moves policy. We'll support you to share it safely.
Invite us to your church, mosque, temple, marae, workplace, school.
NZ Blood Service always needs donors, especially from at-risk ethnic communities.
Advocacy takes money. Donations underwrite our policy team.
Ask candidates where they stand on rare disease care and ethnic health equity.
Dear [MP name],
I'm writing as a constituent to ask you to support universal newborn screening for haemoglobinopathies (thalassaemia and sickle cell disease) in New Zealand.
Most developed countries already do this, including the UK, USA, and most Australian states, because early diagnosis transforms outcomes for affected babies and is highly cost-effective.
As a [parent / clinician / community member / etc.], I've seen [your specific reason]. I'd love to hear what you and your party are doing to support this change.
More information: muskaancaretrust.org.nz/newborn-screening
Thank you for your consideration,
[Your name]
[Your suburb]
Don't know who your MP is? Find them at parliament.nz.
